What is Cystic Fibrosis?

Mucoviscidosis (cystic fibrosis) is a systemic hereditary disease caused by the mutation of the cystic fibrosis transmembrane conductance regulator (CFTR) gene. The disease is characterized by severe dysfunction of respiratory organs and the gastrointestinal tract in parallel with impairment of excretory glands. CF patients are not contagious and their intelligence and other cognitive faculties are not impaired by the disease. Timely diagnostics and adequate treatment can often lead to a productive and long life for the patient.

 

General information about the disease

About us

The mission of the Foundation is to provide help for people suffering from the rare - and so far incurable - genetic disease, cystic fibrosis. Our aim is to improve their quality of life; to facilitate their integration into society and effective understanding of disease; to discover their talents and unlock their creativity; to support parents’ organizations, foundations and noncommercial partnerships interested in improvement of health services; to promote early diagnosis, and to develop legal and social protection of this category of citizens.

 

About us

Nutrition for cystic fibrosis patients

The film is made in partnership with leading Russian experts who offer consultations to children and adults with cystic fibrosis. In the first part Elena Aleksandrovna Roslavtseva (Ph. D., Senior Scientific Researcher of the Department of nutrition for healthy and sick children in the Scientific Center of Child Health, the Russian Academy of Medical Science) explains the digestive system in detail. In the second part, Natalia Anatolievna Krylova (dietarian of the State Budgetary Healthcare Establishment Scientific Research Institute of Pulmonology of the Federal Medical Biological Agency of Russia) discusses the topic "Ways of introducting a high-caloric diet". In the final part of the film Alexey Otradnykh (CF patient) shares his considerable experience in gastrostomy tube use.

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