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Government aid to patients with cystic fibrosis

What documents regulate the drug coverage of patients with cystic fibrosis?

 

The basic document is Federal law no. 323«About the fundamentals of the public health protection in the Russian Federation» as of 21/11/2011, article no. 44 «Health care for people with rare (orphan) diseases»:

The rare(orphan) diseases are the ones that have a prevalence proportion of 10 cases / 100 000 population. Thus, the cystic fibrosis is considered as a rare disease and included in the List of orphan diseases which can be viewed at the web page of the Ministry of Health of the Russian Federation.

Normative document

Name

Patient category

Conditions

Average period of treatment

Law no. 1206n dd 20.12.2012 issued by the Ministry of Health RF

About authorization of primary health care standard for patients with cystic fibrosis

Children

Adults

Out-patient

365 days

Law no. 1605n dd 28.12.2012 issued by the Ministry of Health RF

About authorization of specialized health care standard in cystic fibrosis(mucoviscidosis)

Children

Adults

In-patient

20 days

 

 

The patients with cystic fibrosis younger than 18 yo can receive a high-tech medical care both at the medical institutions of the constituent entities of the Russian Federation (if such hospitals are available) and at the Federal hospitals acc. to the annually updated law of the Ministry of Health RF about the high-tech medical care (please see the web page of the Ministry of Health — www.rosminzdrav.ru).

The patients with cystic fibrosis older than 18 yo can receive a specialized medical care at the hospitals of the constituent entities of the Russian Federation as well as at the Moscow City Clinical Hospital no. 57 upon approval of the consulting center. The web page of this hospital is http://gkb57.ru/info/60/

The City Clinical Hospital no. 57 hosts the Research Institute of Pulmonology. The Head is Prof. Chuchalin, Academician of the Russian Academy of Medical Sciences. The Head of CF laboratory is Dr. Elena Amelina, MD.

You can see more details about drug coverage of cystic fibrosis patients in Russian here.