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Useful addresses

Russian cystic fibrosis centers.

Scientific and clinical department of cystic fibrosis of State Institution of Medical-genetic Scientific Center of the Russian Academy of Medical Science — Russian center of diagnostics and treatment of cystic fibrosis. Address: 115478, Moscow, ul. Moskvorechie h. 1

Chief Research Officer, professor, Doctor of Medicine — Kashirskaya Natalia Yurievna, tel.: 8499 254-90-49. E-mail: russia-cf@mail.rurussia-cf@mail.ru, you can ask questions at the websites: www.mucoviscidos.ruwww.cf-rf.ru

Director — professor, Doctor of Medicine Kapranov Nikolay Ivanovich, tel.: 936-93-97, 936-94-97, F

Scientific research institute of obstetrics and gynecology of the Russian Academy of Medical Science named after D.O.Ott, Russian center of prenatal diagnostics. Address: 199164, St.-Petersburg, Vasilievsky ostrov, Mendeleyevskaya liniya, house 3.

Director — professor Baranov Vladislav Sergeevich, tel.: 328-98-09, 218-98-09, 328-04-87.

Russian children clinical hospital. Address: 117513, Moscow, Leninsky prospect, house 117, building 3, 4 floor (medical genetics department). 
Head of the branch, Ph.D. — Semykin Sergey Yurievich, tel.: 936-91-33, 936-93-33,

City hospital №    57 Address: 105077, 11-ya Parkovaya ulitsa, h. 32/61 (help to adult patients). www.mosgorzdrav.ru/gkb57

Head of cystic fibrosis group — Ph.D. Amelina Elena Lvovna, tel.: +74997800806, 
Doctor, lung specialist — Krasovsky Stanislav Aleksandrovich

Interregional public organization »Help to cystic fibrosis patients».
Assistant — Ageeva Nina Ivanovna, tel.: 426-51-76.
Chairman — Myasnikova Irina Vladimirovna

City children hospital №    13 named after N.F.Filatov, Moscow municipal center of help to cystic fibrosis patients (out-patient) 103001, Moscow, ulitsa Sadovaya-Kudrinskaya, house 15

Consultative and diagnostic unit (entrance from ulitsa Zoologicheskaya, house 15), Reference information and appointment by phone:

254-63-61 (from 9 o'clock till 18 o'clock)
510-513 offices www.mosgorzdrav.ru/dgkb13
Research supervisor — professor Kapranov Nikolay Ivanovich, tel.: 8 499 254-90-49,
Head of the department — Sherman Victoria Davidovna, tel.: 8 499 254-90-49.

Scientific center of children health of the Russian Academy of Medical Sciences (SCCH RAMS) Address: 119991, Moscow, Lomonosovsky prospect, house 2/62. www.nczd.ru

Doctor of Medicine, head of the branch of Hereditary and congenital diseases of respiratory bodies — Simonova Olga Igorevna, tel.: (495) 134-93-31.

Russian Scientific center of Surgery named after academician B.V.Petrovsky of the Russian Academy of Medical Sciences
Address: 119991, Moscow, GSP-1, Abrikosovsky per., house 2 Department of pulmonary and mediastinum surgery.

Chief Research Officer, Doctor of Medicine — Parshin Vladimir Dmitrievich, tel.: 248-11-94, appointment: 84997664704 www.med.ru/patient/wards/persons/chief/19

St.-Petersburg State Healthcare Institution«Saint Olga Municipal Children Hospital»

194156, St.-Petersburg, Zemledelcheskaya ulitsa, house 2

tel.: 295-69-92, fax: 295-69-98

Head of pulmonology branch            Orlov Alexander Vladimirovich

pulmonology3@hotmail.compulmonology3@hotmail.com

CHILDREN REGIONAL HOSPITAL:

St.-Petersburg, ul. Komsomola 6, pulmonology department, head of the branch Fedotova Olga Vladimirovna 8(812) 542-53-62

Scientific Research Institute of Pulmonology of St.-Petersburg State Medical University named after academician I. P. Pavlov, 197089, St.-Petersburg, ulitsa Roentgena, 12

Chermensky Alexey Georgievich, Gembitskaya Tatyana Evgenievna 234-13-83

Municipal Multipurpose Hospital №    2, (MMH 2), 194354, Vyborgsky district, Uchebny per., house 5, pulmonology department, head of the branch Stepanenko Tatyana Aleksandrovna 8 (812) 510-94-86

Regional cystic fibrosis center of Yaroslavl, head of pulmonology department of Children Clinical Hospital №    1 Asherova Irina Karlovna

LIST OF REGIONAL REPRESENTATIVES AND INFORMATION PROVIDERS OF INTERREGIONAL PUBLIC ORGANIZATION«HELP TO CF PATIENTS» IN THE REGIONS OF THE RUSSIAN FEDERATION 

1. Moscow — Prikhodko Oksana Vasilievna
Vice-president of the board of the Interregional public organization in Moscow
Tel. 8-915-295-72-50

2. Moscow region — Alekina Olga Vladimirovna
Vice-president of the board of the Interregional public organization in Moscow Region

Tel. 8-915-488-37-56

3. The Republic of Tatarstan — Alekseeva Svetlana Gennadievna (Kazan)
Regional representative of the Interregional public organization in the Republic of Tatarstan 
E-mail: 118sveta@mail.ru
Tel. 8-917-279-01-41
4. The Republic of Mordovia — Kraynova Irina
The information provider in Mordovia 
e-mail: ika@avalon.ru

5. The Kirov region — Shebeko Olga
The information provider of the the region
e-mail: mapet106@yandex.ru

6. The Tyumen region — Isaeva Olga
The regional representative of the Tyumen region
E-mail: olvicis@rambler.ru
Tel. 8-905-820-27-52 

7. The Nizhny Novgorod — Eryutova Anna 
The regional representative
E-mail: erutova_anna@bk.ru
Tel. 8-951-903-86-13 M. 
Galina Tarasova nn-mv-gala@rambler.ru
+7-905-011-97-86

8. The Kurgan region — Nikiforova Galina Yurevna  (Katajsk)
The information provider of the region
E-mail: seahalf@yandex.ru
Tel. 8-3525122977

9. The Khabarovsk region — Mkrtchan Tatyana Aleksandrovna
The information provider of the region 
E-mail: 195541963@pisem.net
Tel. 8-924-209-64-06

10. The Krasnodar region — Likhosherstova Svetlana
Adygea           Pogorelova Tatyana
The regional representative 
E-mail: lichju@mail.ru
Tel. 8-928-840-96-58; 8-918-474-40-86 

11. The Tomsk region — Tarazanova Svetlana Leonidovna
The regional representative
E-mail: tdu@tomsk.net

12. The Ulyanovsk area — Grishin Sergey Aleksandrovich
E-mail: s.grishin81@mail.ru
Tel. 8-422-63-41-36

13. The Republic of Bashkortostan — Chernova Olga Leonidovna  (Salavat)
E-mail: molodeg_salavat@mail.ru

14. The Saratov region — Isaeva Irina 
The regional representative
Tel. 8-902-717-97-29
E-mail: isaeva_saratov@bk.ru

15. The Republic of Mary El — Latypova Irina Nikolaevna
The regional representative
Tel. 8-836-45-72-814  (home)
E-mail: latypova-irina@mail.ru

16. The Voronezh region — Sevryukova Eleonora Konstantinovna
The regional representative
E-mail: eleonora-sk@mail.ru
Tel. 8-960-121-09-29

17. The Sverdlovsk region — Fedorova Elena Mikhailovna
The regional representative
8-9222028642
E-mail: efedorova06@rambler.ru

18. The Stavropol region — Sarkisova Natalia Grigorievna
The regional representative
Tel. 8-961-478-12-32 mob.; 8-865-53-329-21 home.

19. The Samara region — Morozova Lyudmila Aleksandrovna
The regional representative
E-mail: morozova@psati.ru
Mobile 8-927-608-79-92 

20. Saint — Petersburg
Yulia Shamanovskaya
Director of Noncommercial Partnership »Organization of help to cystic fibrosis patients»
Tel. 8 911 235 58 92
E-mail: shaman.julia@gmail.com

21. The Volgograd region — Sokolovskaya Ljubov Aleksandrovna
The information provider of the region
Tel. 8 905-331-44-73

22. Kursk region — Pavlenko Ivan Vitalievich
The regional representative
Tel. 8-919-279-9999
8-910-279-08-90  (his wife Lena)
E-mail: muk-kursk@yandex.ru

23. The Tver region — Sennikova Marina Petrovna
Tel. 8-920-696-82-11 
E-mail: senn-marina@yandex.ru
The regional representative

24. The Kaliningrad region — Ivanova Natalia Yurievna
The contact person
Tel. 8-401429-33-14 home.
8-921-260-19-31 mob.

25. The Perm region — Leshukova Ekaterina
The information provider of the region
E-mail: katja.leshukva@rambler.ru
26. The Republic of Kalmykia — Badaev Valery
The information provider of the region
E-mail: badaev_vm@mail.ru

27. The Novosibirsk region -  Koreneva Galina Vladimirovna  
Is planning to become the regional representative
Tel. 8-913-788-87-65
E-mail: ykoreneva@ngs.ru

28. The Rostov region — Derkachev Oleg  (Shakhty)
Active parent
E-mail: xpsony@rambler.ru

29. The Kemerovo region — Zaytseva Nina Alekseevna  (Prokopievsk)
Tel. 8-923-624-33-26  (mob.) Home tel.: 8  (she does not know the code)-65-67-61
iri9962681@mail.ru

30. City of Bratsk — Mozgovaya Svetlana  (aunt of CF patient)
The contact person of the region
E-mail: sveta123415@yandex.ru

31. The Irkutsk region — Jeanne Kvyatkovskaya
The contact person of the region
E-mail: jkvyatkovskaya@vibaikal.ru

32. The Bryansk region — Khokhlova Oksana Vladimirovna
The contact person of the region
8 962 141 77 88
oks73-73@mail.ru

33. The Vladimir region – Volkova Nadezhda Vladimirovna
The contact person of the region
Mobile 8-920-921-15-62
Home 8-49232-2-46-95 

34. The Murmansk region – Tropinina Alena Sergeevna
The information provider of the region 
Tel. 8-921-164-86-52 M.; Home 8-81553-44242

35. The Ivanovo region – Osokina Natalia Nikolaevna
The regional representative 
Мobile 8-902-318-77-80; home 8 (4932) 42-54-86
e-mail: osokin.76@mail.ru

36. The Leningrad region — Vlasova Natalia Anatolievna
Prepares documents for regional representative office
E-mail: nat-75@bk.ru

37. The Republic of Komi — Petrashenko Nina Vasilievna
The contact person of the region
Residence – Vorkuta, tel. 8-82151-6-32-74  (home

38. The Omsk region — Ponomarchuk Galina Vladimirovna
Director of the Omsk organization of CF patients
Planning to enter the organization
kalina-omsk@rambler.ru

39. The Karachayevo-Cherkessian Republic – Argunova Tatyana Nanuovna
Deputy Minister of Health of the republic
8-878-22-5-77-15  (work)
8-928-380-70-84
Argunova-mz@mail.ru
She has agreed to become a contact person in the region

40. The Tambov region — Ershova Vera  (Michurinsk) -
The contact person in the region
+7-915-862-48-18  (mob.)
Chief lung specialist – Maria Evikovna 8-902-72-90-554 

41. The Republic of Buryatiya, Ulan-Ude – Stepanova Lyubov Ivanovna
The contact person in the region
8-924-396-96-43  (- 5 hours)
(3012) 43-49-24 home.

42. The Smolensk region – Yulya
The contact person in the region
+7-908-281-54-94

43. The Belgorod region – Vetrova Yulia
The contact person in the region
E-mail: vetrova2006@mail.ru

44. The Krasnoyarsk region – Ilienkova Natalia Anatolievna
8-391-2400-120 
ilenkova1@mail.ru

Yaroslavl Regional Public Organization
of help to cystic fibrosis patients »Malenky Muc»,

Matveeva Natalia Vadimovna,
Chairman of board 
+7 910 975 19 51
http://ярмук.рф/index.html muk_yaroslavl@mail.rumuk_yaroslavl@mail.ru