In November 2016, a book by the European Cystic Fibrosis Society (ECFS), Living Longer with Cystic Fibrosis, was published in Russian.
The book was translated into Russian and published by the Ostrova Charitable Foundation for distribution among patient organizations and doctors involved in the treatment of cystic fibrosis. More than 30 authors participated in the development of this book, which offers a comprehensive overview of the main problems adult patients are facing. Invaluable data was provided on adult patients between the ages of 21 and 59 who are suffering from cystic fibrosis, making it possible to better understand what it means to be an adult living with the disease.
The editorial board of the Russian edition consisted of: Alexander V. Orlov, Associate Professor of Pediatrics at the Saint Petersburg State Mechnikov Medical Academy and Head of the Division at St Olga Public Children’s Hospital in St Petersburg; Stanislav A. Krasovsky, Senior Research Scientist at the Cystic Fibrosis Laboratory at the Pulmonary Research Institute of the FMBA of Russia, pulmonologist at the 2nd Division of Pulmonology at Pletnev Hospital in Moscow, Senior Research Scientist at the Cystic Fibrosis Clinical Department at the Medicogenetic Research Center in Moscow; and consultants, I.K. Asherova, PhD, (Yaroslavl), and O.I. Golubtsova, PhD, (Cheboksary).
The book was translated and published under the auspices of the charitable program “СF-Info,” which aims to provide patients and practicing physicians with the latest resources about living with cystic fibrosis and treatment methods.