People who encounter rare and frightening diagnosis often either find themselves in information vacuum or, vice versa, are overwhelmed by information, and it can be very hard to make sense of it without help.
An Info-CF Programme was created to provide patients, their parents and medical professionals with the essential literature on CF treatment and on life with this diagnosis.
Books on cystic fibrosis published by the Ostrova Charitable Foundation will be as well brought to Russian regional libraries.
A professional observing a CF patient in his/her region, a medical student interested in the topic, or a parent of a child with CF will be able to find necessary information in the library
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