Новости/Новости фонда/Вы здесь

Diagnosis: Cystic Fibrosis. What comes next?

In January 2018 the Ostrova Charitable Foundation published a roadmap «Cystic Fibrosis. What’s next?» aimed at parents who faced this difficult diagnosis for the first time. The roadmap book was compiled by Lyubov Kostina, a young mother who asked the Foundation for help when she understood that her child had cystic fibrosis. Step by step she made this arduous journey from the first shock to a meaningful set of actions, and worked out, in her opinion, an effective program that would help young parents who confront this disease for the first time.

The roadmap book is available at the website under «Library» section.

26.02.2018