“Pressing issues of pulmonology. Cystic fibrosis in children and adults” was the topic of a research and training conference in Perm. Around 40 professionals attended the event at the Amaks Hotel conference hall on April 6.
Just 10 years ago, cystic fibrosis was considered to be a childhood disease in Russia. But now, increasingly more attention is being given to issues of continuity and sharing experience between pediatric and adult cystic fibrosis organizations.
The conference was opened by Evgeniy G. Furman (vice-rector of Perm State Medical University, associate member of the Russian Academy of Science, and a professor).
Olga B. Bakhmanova, who is an advisor to the Ministry of Health’s Department for the Administration of Pediatric and Obstetric Medical Services for Perm Region, represented the Ministry of Health at the conference.
Patient organizations are increasingly acting as full-fledged participants in the dialogue between the medical community and the state on improving the healthcare system.
Elena M. Musina, president of “MechtaYaZhit (Dreaming to Live)”, a Perm-based regional non-governmental and non-profit organization providing support for disabled individuals and cystic fibrosis patients, wrapped up the meeting.
