The Russian Federation Cystic Fibrosis Patient Registry for 2016

The Russian Federation Cystic Fibrosis Patient Registry for 2016 has been published.

Data on 3,049 patients, representing 81 of Russia’s regions (federal subjects), were included in the registry.

The Ostrova Charitable Foundation has been participating in the project for several years now, funding part of the printed copies and helping to distribute the information. For example, free copies of the updated registry will be handed out to participants at the 9th Research and Training Conference that will take place in Saint Petersburg on May 18–19.