The Registry of Cystic Fibrosis Patients inthe Russian Federation for 2017 has been published.
The collection of data is, of course, of great interest for scientists, cystic fibrosis specialists, physicians, and public health organizations in regards to the competent organization of medical and social care for cystic fibrosis patients.
The Registry includes data on 3096 patients, representing 81 subject regions of the Russian Federation.
The Ostrova Charitable Foundation is sponsoring the project, funding part of the circulation costs, and assisting in the dissemination of the information.
An electronic copy of the document is available for review on our Russian-language website in the Библиотека section.